Articles and resources co-authored by Making Waves members

Dunaway, K, Brion, S, Hale, F, Alesi, J, Assan, H, Chung, C, Bell, E, Moroz, S, Namiba, A, Ouma, J, Owomugisha , I, Ross, G.V., Strachan, S, Tholanah, M, Yuvaraj, A, Welbourn, A. (2022) What will it take to achieve the sexual and reproductive health and rights of women living with HIV? Women’s Health.

Shepherd, J. (2022) ‘We can’t be perfect all the time.’ Life with HIV before antiretrovirals: A narrative analysis of early published stories by women with HIV in the United Kingdom. Women’s Health, Volume 18.

Kasadha, B, Tariq, S, Nyatsanza, F, Freeman-Romilly, N, Namiba, A, & Rai, T. (2022). Stakeholder engagement is essential to maximise the impact of research on infant feeding in the context of HIV. Therapeutic Advances in Infectious Disease8, 20499361211057970.

Hickey G, Porter K, Tembo D, Rennard U, Tholanah M, Beresford P, Chandler D, Chimbari M, Coldham T, Dikomitis L, Dziro B. (2022) What does “good” community and public engagement look like? Developing relationships with community members in global health research. Frontiers in Public Health.:2446.

Namiba A, Kwardem L, Dhairyawan R, Hale F, McGregor Read J, Anderson J, Welbourn A. (2022) From presumptive exclusion towards fair inclusion: perspectives on the involvement of women living with HIV in clinical trials, including stakeholders’ views. Therapeutic Advances in Infectious Disease.

Bell, E (2022) Research Query: One Stop Centers – Models, Standard Operating Procedures (SoPs) and Guidance. GBV AoR Helpdesk. Gender Based Violence in Emergencies.

Bell, E (2021) Preventing and Responding to Gender-based Violence in Faith-based Communities: An Annotated Bibliography of Recommended Resources. GBV AoR Helpdesk. Gender Based Violence in Emergencies.

Ellen Kajura Bajenja, Emma Bell, Fiona Hale, Longret Kwardem, Rebecca Mbewe, Rahayu Rahmat, Martha Tholanah, MariJo Vázquez, Lucy Wanjiku Njenga,  Alice Welbourn (2020) Why is gender mainstreaming so vital right now? Apolitical, the global learning platform for government. August 10, 2020.

Women and Menopause (2021) Zimbabwe. Available in English, Shona, and Ndebele.

Resources developed under the project Tracking the impact of COVID-19 on women’s and girls’ sexual and reproductive health and rights in Eastern and Southern Africa

ITPC, GALZ, JSF, PYWV, YP, Making Waves and Salamander Trust (2022) Are the Sexual and Reproductive Health and Rights of Women living with HIV still confined by Covid-19?: An analysis of then and now.

Salamander Trust, ITPC, Making Waves (2020) Confined by Covid: Women, girls, HIV and sexual and reproductive health and rights. The challenges, responses and calls for action.

Our Voices: Impact of COVID-19 on women’s and girls’ sexual and reproductive health and rights in Eastern and Southern Africa. Salamander Trust, International Treatment Preparedness Campaign (ITPC), Making Waves (October 2020)

Click here to watch the WEBINAR held on Wed 27 January 2021. Click here to view the slides presented by the researchers. Click here to view a Wakelet compilation of the tweets. And here you can access a full transcript of the webinar with UNAIDS ESARO Director Aeneas Chuma | WHO Dr Meg Doherty | Jacquelyne Alesi, Uganda |  Martha Tholanah, Zimbabwe | Ade Nunu Diana Alison, South Sudan | Joyce Ouma, Kenya | Solange Baptiste and Wame Jallow, ITPC. You can also view the livestream on Facebook (@ITPCGlobal). Thanks to ITPC for hosting this and funding the whole study, and to Jane Shepherd for designing the messages and calls for action.

To view a presentation by Joyce Ouma of Making Waves, summarising the findings of the COVID-19 research in East and Southern Africa, click here. To view a pdf of Joyce’s presentation, click here. To access a transcript of her presentation, click here.

7 video shorts from Joyce Ouma in Kenya, Nunu Diana in South Sudan, Jacquelyne Alesi in Uganda, and Martha Tholanah in Zimbabwe describe what is happening to women and girls living with and affected by HIV in their communities. To access all the videos, click here.

To access the transcript of all the videos click here. For a transcript for each contributor , please click on the relevant name: Diana | Jacquelyne | Joyce | Martha

The work above built on community research just before the outbreak of the pandemic: AfricAid, ICW- EA, ITPC, Salamander Trust (April 2020). Women, HIV and their Sexual and Reproductive Health and Rights: Are we Meeting WHO Guidelines? A focus on contraceptive rights, inclusion, access, research in the context of HIV: Some voices from the community.

For more about this project, see the ITPC website and the Salamander Trust website.

AIDS 2020 poster presentation:

E-Poster, Track F |  PEF1894 | Less talking about us and more hearing from us: Why so few women / trans people living with HIV as speakers, oral abstract co/authors, and abstract presenters at AIDS 2018?

Martha Tholanah speaks to this research which documents the on-going lack of meaningful involvement of women living with HIV in the AIDS conferences. This poster is co-authored by Cecilia Chung, Martha Tholanah, Emma Bell, Fiona Hale and Alice Welbourn. To access the poster, and here Martha describe our research, click here.

Digital protocol:

Salamander Trust, 4M Mentor Mothers Network, Positive Young Women Voices, Making Waves, CFAR-Uganda (2020) Women Working Virtually: A Protocol for Digital Communications.

Resources by organisations of women living with HIV

Women who use drugs

SALVAGE in Tanzania has shared with us a series of documents:

SALVAGE (2020) SALVAGE Stories. Activity Pictures January to June 2020. Tanzania

SALVAGE (2021) Newsletter. Tanzania

SALVAGE (2021) Women who use drugs in Tanzania

Violence against women living with HIV

Luciano, D., Negrete, M., Vázquez, M.J., Hale, F., Salas, J., Alvárez-Rudín, M.,
Arends, M., Cano, A., Iacono, M., Sánchez, M., Cabezas, M., Chete, B., Flores, G., García, F., Herreira, ML., López, L., Ramírez, B., Soto, EM. (2020). Estudio Regional sobre Violencia y Mujeres con VIH en América Latina. ICW Latina, Hivos, Development Connections y Salamander Trust. Nicaragua.

This Latin America and Caribbean regional study of violence against women living with HIV took place in 7 countries, led by women living with HIV and with the involvement of 955 women living with HIV including Indigenous, Garifuna, Afrodescendent and young women. As well as the full report, it produced the following documents in Spanish:

The results of the study are available in summary form in English in the following documents:

Rights violations in healthcare settings

ICW East Africa (2015) Sexual Reproductive Health and Rights Violations Experienced By Women Living With HIV Within HIV And Reproductive Health Clinical Settings and Community Settings.